Family Support

MitoAction - Support, Educate, Advocate

MitoAction, a Boston-based 501(c)(3) charity incorporated in 2005, is the only dedicated support and empowerment organization for patients and caregivers affected by mitochondrial disease. Its mission is to improve the quality of life for all people with Mito through education, support, and advocacy initiatives. MitoAction believes help today for Mito patients and families is just as important as research for a cure tomorrow.

MitoAction's resources and programs include monthly teleconferences and support groups, awareness kits, an educational DVD, the g-tube book, "When Jeremy Jones' Stomach Stopped Working," a symptom guide for clinicians, educational advocacy, the Send a Kid to Camp program, Mito Patient & Family Socials, and more.


While helping families living today with mitochondrial disease, MitoAction strives...

  • To improve quality of life for adults and children affected by mitochondrial disease.
  • To raise awareness internationally about mitochondrial disorders and their relationships to other diseases.
  • To provide specific and practical materials that help patients to manage their symptoms.
  • To aggregate and connect the international mitochondrial disease community and to engage the pharmaceutical industry working toward therapeutic approaches to mitochondrial disorders.
  • To create tools that empower patients and caregivers to be advocates for themselves or their children.

Estimates now suggest that 1 in 2,000 people will face a diagnosis of mitochondrial disease. MitoAction's help is vital as Mito patients and families try to navigate this difficult journey of living with mitochondrial disease. All of MitoAction's programs and resources are free.

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